Monday, May 6, 2013

Cardiology Appt.

Hi everyone.  Christopher had a cardiology appointment on Friday so I thought I'd update (hey look it's only been 2 months since my last update!).  Apparently Dr. Chang is very pleased with the way Christopher's heart is pumping and squeezing.  He sees no need to rush a stent or his Fontan procedure.  He mentioned talking to Dr. Kyzer (he preformed the angioplasty) to make sure they are on the same page.  So we are back on track with surgery being sometime in 2014.  Not sure about the timing of the stent really.  We won't be back until November, when they'll take another gander at everything and check his pacemaker battery.  It feels strange that we haven't had a pacemaker check since November and now we won't have an ultrasound until November too.  

Chang also stopped one of his meds permanently.   He had us stop his blood pressure med to try to figure out why he's coughing so much, though I think it could be allergies or asthma.  So right now he's only on baby aspirin. It's really odd only giving him half an aspirin in the am.  We are used to 3 meds am and 2 pm.  When he was first home from the hospital it was 6 am 2 afternoon 4 pm.  He's so happy he doesn't have to take the yucky ones.  He'll have to get back on blood pressure meds in a week or so.  But right now it's a strange but nice change.  

That's all I know.  And here's a pic from the appt.  Love to all!

                                                  Chris is too cool in mom's sunglasses!

4 comments:

  1. Yay for Christopher! He looks so suave in those glasses! We love you guys! xoxo

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  2. Hoorah for Chris he's a strong trooper and Praise the Lord, a breather for you all!!!!

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  3. I'm SO glad that he is doing so good!! I loved seeing his scar, gives me an idea of what to expect for Owen!!

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  4. Thank you Liz and Auntie Pattie. sian no way!!!!! unless he has to have his chest open for a week and have a pacemaker, and have tons of tubes in his lungs, and a thoracotamy...his scar should be a little, thin, pale 6 inch line that will fade quickly. Christopher has had 2 open heart surgeries, his first one his chest had to stay open for 7 days before closing. That caused the scar to take forever to heal, plus 4 months later they reopened it. Also, he had areas on his incision that tore because he was so small he didn't have fat or muscle tissue to hold his stitches together. I had to literally pack a hole with saline, silvadene, and gauze every day for a month or two. Chris' scars are some of the worse I've seen. I really hope Owen's scar heals a heck of a lot better than Chris'. I try not to draw too much attention to it, especially with him being 3 and more observant now. He has said things like, 'when I get big, my heart will be all fixed', and 'why doesn't ty have an owie?' It's tough trying to explain that his heart will never be whole. He can't just have it fixed. He is missing so much of what a normal heart has, his heart will never be 'all better'. I am glad Owen seems to be doing well. It is a very overwhelming experience. Most little ones thrive after their surgeries. be sure to keep us posted!

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